Post by fatoom86 on Apr 29, 2015 20:09:52 GMT 4
i have decided to share my story and hope others will join....i have a family who is not really understanding of ms. when i was diagnosed they felt the drs were wrong. you know how ms is...the symptoms go away. so when they went away my family said they were right an that they drs were wrong. i was young and wanted to believe that so did. i completely lost my sight and went to the dr. i went on steroid. it went on and off for years and every time they suggested a new different medicine. never the drugs. two years ago in an argument i was told that it was my fault i was sick because i ha the steroids and if i had listened and not had the steroids i would not be sick. i am in a wheelchair now and i know they think it is my fault because i went on the steroids. i know many people won't understand this but i want to share it because it will let others in my place know they are not alone and i hope they will stand up in the early years and say that they will get the medication before they end up in a wheelchair like me. i did not go against my whole family because i was wanting to believe that the diagnoses was wrong too for many years. and as it got worse i did not go against them because i need thewi support. they will care for me if i stay with them but i am scared they will not care for me when i get worse if i do not stay with them and this thinking. and i cannot do it on my own. ms gets worse....that is what it does. so even on meds i will get worse. it has been a very confusing thing but i have had to do what i had to do each time. i hope things change for other young new diagnosed people and that they have all of the support they need. i hope your group helps educate people on ms as it is real and it is existing in our society now.